Tuesday, April 5, 2011

Scentsitive

When I first started teaching my friend Tammie and I had a tradition.  At Christmas and other holidays, we would purchase different scents of Yankee Candles for one another.  Oh, how I loved the scent of a Yankee Candle!  Tammie tended to favor the floral scents---Hydrangea being one of her spring favorites.  I leaned toward the heavier holiday smells of Christmas Cookie and Cinnamon.



But a few years ago, it became apparent that my candle-collecting hobby would have to end.

* * * * *

My mom started experiencing migraine headaches in her late thirties.  I have memories of a coworker bringing her home because she was unable to drive for the pain and sickness. 

I can remember Mom and Dad coming to visit me at college, only to have to put her to sleep in my bed until the pounding and vomiting would go away.

And over the years, Mom noticed that her triggers had nothing to do with the suggestions her doctor asked her to track, such as peanuts or chocolate.

Mom's were due to fragrance---or so we suspected.


 
A short walk past the perfume counters would trigger a migraine.  We tried to slide through the maze of free perfume samples quickly just to get to the main part of the mall.

Finding a place to sit in church became trial and error.  Inevitably, a heavily perfumed woman would sit next to us, and we'd need to change seats.  At times we ended up sitting in the choir loft to avoid fragrances.

And over time, it wasn't the heavy perfume that bothered her.  She became like a bloodhound, aware of the slightest micron of scent.  No one else in our family would smell it, but she could. 

Teaching in her elementary school became difficult.  Working in a classroom put her, literally, in a potpourri of fragrance.  From the shampoo and scented lotion her students used to the fabric softener sheets employed by their parents, my mother found her migraines becoming more frequent and more intense.  In addition to the physical symptoms her migraines would bring, my mom also experienced social isolation.  She would avoid certain offices, stores, and people, afraid of triggering a migraine.  Not to mention, not everyone understood what she was experiencing.  As with many silent disorders, people can respond in a range from not understanding to being downright cruel.

I was fortunate to attend a conference in Pittsburgh called Women's Health and the Environment in 2007.  Sponsored by the Heinz Foundation, it gathered current researchers to present their findings on how our health is affected by what we choose to eat, the air we breathe, and the chemically-laden products we use on our skin.  It was at that conference that I learned that there is a name for my mom's condition.  It's called CS or MCS, for Chemical Sensitivities or Multiple Chemical Sensitivities.

Today, Suzanne over at Mommy Footprint has written about Chemical Sensitivity.  At the bottom of her post she gives a few starter ideas if you're thinking of reducing the amount of fragrance in your life.  If you or someone you know seems to be sensitive, you may want to hop over and check out her recommendations.

* * * * *
So, do I still burn candles?

The answer is yes.  I couldn't live without the beauty of soft candlelight.  But the candles I burn now are fragrance-free.  No more Yankee Candles in our home.  Since my mom lives next door and I love her, I do whatever I can to reduce the risk of exposing her to synthetic fragrances.

On so many levels, going fragrance-free fits in with what I believe about the chemicals we use and the impact they have on our immediate environment.  So it's a step we've taken on our journey.  Tomorrow I'll be back to talk about the ways we've been able to reduce fragrance in our home, and some resources that have helped along the way.

8 comments:

  1. I think I should link this blog entry to my blog/facebook.
    I'm allergic to all scents -- perfumes, colognes, candles, scented cleaners, deodorants, etc. I wasn't always allergic to scents. I used to wear perfume. I briefly worked in a scented candle shop. I still own a bunch of scented candles, hidden in my basement now. Everyone who knows me well knows this, but scents are a very touchy subject.
    The thing is, no one thinks they wear too much perfume but nearly everyone wears too much. Once you wear a scent every day, your nose needs more and more to continue smelling it.
    Telling someone you're allergic to perfume is one thing. Telling someone that her perfume specifically is inducing an allergic reaction is another. It seems, to me, some people don't really believe perfumes bother allergies or affect other people. Many people become immediately defensive, thinking I'm criticizing their perfume, or that I'm saying I think they stink.
    I used to work with a woman who wore so much perfume that you could tell what rooms she'd been in because you could still smell it. You could almost taste it in the air. There were two of us with genuine allergies and several others who just couldn't stand it in general. Try solving that one in an office setting. She was asked, extremely politely, and flat-out declined to even try to tone it down.
    We tried to establish a 'no-perfume/cologne' rule in the office as part of the dress code and it was decided that we can't tell people not to wear perfume.
    My mother LOVES scented candles, scented household cleaners, lots of perfume, scented dryer sheets, scented dish soap, scented feather dusters, scented floor cleaners....etc, etc, etc. Before I moved out, we had some difficult times. She just refused to accept the allergy and couldn't seem to stop herself from buying everything that comes 'scented' when scented is an option.
    I think one thing I would really love for people to understand is how thoroughly this type of sensitivity affects your life. There is no place that is 'safe' outside of your own home. There are no places to go that this won't become an issue at some point. There is no getting away from it. Everything a person can use from personal hygiene to household cleaning has the potential to be scented. In fact, some items are nearly impossible to find un-scented.
    You have to read every label. Most items that aren't specifically marked 'un-scented' are in fact scented. It can be incredibly frustrating.
    Most of the time, any scent will bother me to some degree, but it doesn't get too bad unless it's a very heavy scent or it's heavily used. My throat and eyes begin to burn and swell a bit, sometimes before I've even 'smelled' the scent. The coughing and sneezing, runny nose, starts and the headache comes in last.
    It's miserable. I'd give just about anything to trade this allergy -- I'd rather be allergic to chocolate, and I love chocolate, but at least I would never be unwillingly subjected to chocolate.
    I completely empathize with your mother. You are a wonderful daughter for making sure your home is welcoming for her.

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  2. Oh my gosh! My mom is the same way! I remember her laying in bed at noon with the room dark, cold rags on her head, and her throwing up over and over! I couldn't understand why , untill I got older and had children and started to have the same experiences. Not to that extreme but bad enough. She apologizes all the time for "giving me" me illness and says she hopes I dont end up as bad as her :( Thanks for the links; I'm checking them out for sure !

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  3. Thank you so much for this article! I too have developed a sensitivity to fragrances although not as bad as your mom. Unlike my sister I don't develop migraines, just headaches which a couple painkillers usually take care of. Unfortunately my coworkers are the type that don't understand my problem. Fortunately my family and close friends understand.

    I appreciate your sharing the information to help inform others and I will be "sharing" your blog on my FB wall to help spread the word.

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  4. Hubs is really sensitive to artificial scents, too- not because of migraines, but just because. We're pretty scent-free. Now, when I smell a candle burning, it's distractingly strong! I never noticed that when I was younger.

    On another note: He's going to be gone next month. . . I'm already looking forward to scents. Then, I'll put them away when he gets back! :-)

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  5. KLL---I'm so glad you wrote. It's one thing to tell my mom's story, but it's so much more wonderful hearing it straight from someone with this allergy.
    It sounds like you've had much the same experience in the workplace. You're right; people get incredibly offended. I think they hear "I don't like it," instead of "It makes me sick."
    I'm glad you have your own house now, so you have a safe haven to detox in at night. :)

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  6. Nicole, isn't it heart-wrenching to see your mom so sick? I remember feeling so bad, and all we could do is wait for the medicine to kick in & for it to go away.
    I didn't realize you got migraines. I hope something in this post may be useful in helping yours become less frequent.

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  7. Aunt B---I'm so sorry that you are experiencing frustration at work. I think that was the worst for mom, when she would try to explain and felt like no one cared. Makes it hard to want to work around people who are insensistive to your needs.

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  8. M---I'm glad you'll be able to enjoy them when K is away. You're showing how much you love him by not burning them when he's around, and I'm sure he appreciates it.

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